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Brainy Car Rally 2018 Photos

A ROARING SUCCESS!

Thank you, for making the 2018 Brainy Car Rally such a wonderful experience! This year’s event saw a spectacular turn out of many new and old friends, and we deeply appreciate each one of you who took time to be part of our Brain Tumour awareness campaign.

For those who unfortunately missed the big day, or who would like to relive the excitement and energy, check out our GALLERY and FACEBOOK for more pictures! We would like to specially thank MVF Studios for the wonderful photographs!

 

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Discussion of Brain Tumours on Radio

We will like to thank Power 98FM and 88.3Jia FM for the opportunity to talk about brain tumour awareness on radio. We hope that through their interviews with Melissa, our BTSS president, more people will be aware of our cause and support brain tumour patients in need. If you want to tune in to the interview, you can catch it on:

88.3FM and Power 98 FM
22 October, 5pm and 7pm (News)
23 October, 9am (News)

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Brainy Car Rally Promo Video

Brainy Car Rally 2018

We are one day away from our Brainy Car Rally! Are you as excited as we are? Come down on 21 October and join us for a memorable day celebrating and standing with the Brain Tumour Community around the world to raise awareness.See you at suntec tomorrow. Open to the public from 10 am to 1 pm. Admission is FREE!#LightupforBTSS #BTSS #Brainycarrally

Posted by Brain Tumour Society Singapore on Friday, 19 October 2018

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Shawn (featured on COCO 爱分享)

Thank you COCO 愛分享 and 马来西亚星洲日报 Malaysia Sin Chew Daily for sharing Shawn’s story! He has been through a lot over the years yet never lets his condition stop him from achieving his dreams.

Our Malaysian friends can show their support for brain tumour awareness by posting creative pictures to illustrate you doing ‘Light up for Brain Tumour Awareness’ on Facebook or Instagram with the hashtag #LightupforBTSS and #IBTAWeek

Malaysian brain tumour patients who wish to connect with BTSS for moral support or information can email us at enquiry@braintumoursociety.org.sg

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2018 International Brain Tumour Awareness Week – 20-27 October

Did you know, the first International Brain Tumour Awareness Week was 10 years ago? It has been a decade since we have begun to raise global awareness for this deadly disease, but much work still remains.

The International Brain Tumour Awareness Week this year runs from 20 to 27 October 2018. As Singapore’s community of brain tumour beneficiaries and volunteers, BTSS stands together with all those whose lives are affected by brain tumours, whether they be patients, caregivers, healthcare professionals, corporations and other stakeholders from around the world.

Come join us this year in our annual Brainy Car Rally to raise awareness about brain tumours through a slew of exciting activities. On 21 Oct 2018, Singapore’s Brain Tumour Awareness Day, stand with us and the rest of the world for the Brain Tumour cause.

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Peter and Sindy

Married for 30 years and blessed with two sons, Peter was shocked when his wife, Sindy was diagnosed with a brain tumour. Determined to maintain a positive outlook for the sake of his wife and children, Peter decided to attend regular support group meetings to learn how to be a proper caregiver for his wife.

Sindy fought hard, tackling each treatment and surgery with courage. Sadly, she passed away in March 2018, surrounded by family and friends. In dedication to his wife’s memory, Peter has continued to attend support group meetings so that he could provide the same support the group has provided to other caregivers struggling to care for their loved ones.

The journey of fighting and recovering from brain tumours is often an isolating one for patients and their families. If you know someone who needs support and advice from Brain Tumour Society Singapore (BTSS), please connect them to us.

Show your support for BTSS by coming down for our Brainy Car Rally on 21 October 2018. We have interactive games and booths for everyone! Attend this meaningful event to your friends and family, we hope to see you there!

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Knowledge is power. Join BTSS Talks!

We at BTSS are blessed and fortunate to have the incredible support of a dedicated team of medical professionals who volunteer their time to share their expertise and insights with us each month during our BTSS Talks.

This October, we are super thankful to Assoc Prof Ng Wai Hoe, Medical Director of NNI, who gave an insightful and interesting talk on advances in tumour surgery. A lively Q&A session was had with discussions on various issues brain tumour patients faced.

Thanks Prof Ng!

BTSS Talks are held on selected Saturday mornings in SGH, do check out our upcoming events for their dates. We are currently planning a series of relevant and useful talks in 2019, and will release their dates as soon as they are ready.

All are welcome, so we hope to see you there!

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Hui Ching and Toby

On 13th June 2017, our world fell apart when our youngest son Toby, aged 4, was diagnosed with Stage 4 Brain Cancer – Medulloblastoma with Spinal Metastasis. 2 days later, he had his first major brain surgery to remove the tumor in his cerebellum. The surgery was successful but left him with severe posterior fossa cerebellar syndrome including mutism.

He could not talk, eat or swallow, move or walk, and his eyes seemed to register nothing. Thereafter, Toby went through 33 rounds of radiotherapy under GA, as well as a few more brain and surgical procedures. He battled Pneumonia and Meningitis and underwent 4 rounds of Chemotherapy and Tandem Stem Cell Transplant.

The Chemotherapy led to permanent moderate hearing loss in his right ear and severe loss in his left. The whole treatment process lasted 8 months with Toby and I staying in KKH, while Daddy and our 2 older boys fending for themselves at home. Today Toby is undergoing regular Speech and Physiotherapy. He is still unable to talk or walk but has learnt to swallow liquids. He enjoys watching TV and having giggles with his 2 elder brothers.

In June, I took Toby to KKH, and that’s how I found out about BTSS, and later Melissa added me to the WhatsApp Chat Group. This provided a lot of support for me as I was able to network with other mothers who were facing the same situation as me. It was therapeutic to hear stories from other caregivers, and what side effects their kids suffered.

BTSS helped me feel less lonely on this journey, and I received a lot of support. I enjoy seeing the support given and received within the BTSS Community, and this helped me through difficult times.

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Miss Sheeba and Eyzra

My son Eyzra started experiencing headaches in January 2009, thanks to a quick diagnosis we did the MRI and proceeded with neurosurgery.

Because of the many hospital visits I accompanied Eyzra, it took a toll on my mind and many times I wished I had some support to keep me going… It was during one ward admission that I bumped into Dr David Low and he asked me, “Sheeba… has Eyzra joined BTSS yet?” and that’s how I got to know about BTSS!

How was Eyzra benefited after joining BTSS? Activities like Baking allows him to bond and mingle with adult survivours and I find it productive for him to get to know a likeminded community like BTSS.

It is such a joy having BTSS as part of my son’s journey and looking back… I wished those hours that I spent waiting at the consultation rooms… there was some support group formed like BTSS… that could give Caregivers like myself… a voice, also thankful for the good work BTSS does in connecting and caring for beneficiaries like me and Eyzra.

Eyzra is pursuing his GCE N’Levels in September 2018, and will be headed to Ohio, United States on 30th August 2018, thanks to Make-A-Wish Foundation.

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Shawn (Featured in Lianhe Wanbao)

Thank you Lianhe Wanbao 联合晚报 for featuring Shawn in this evening’s papers. Shawn has certainly been through a lot over the last few years and he has always been a tough fighter. We are proud of Shawn for never letting his condition stop him from pursuing his dreams and ambitions.

As one of our very own committee members, Shawn serves wholeheartedly to advance the programmes and causes of BTSS. A true inspiration to all of us, thank you Shawn!

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